So last week was my last week on general medicine floors, and I took care of Ms. Jones, the 42-year-old with relapsing non-Hodgkin's lymphoma, who came in for abdominal distention and some difficulty breathing. As I recounted already, her heme/onc physician was sure there was nothing more that could be done along the lines of curative treatment, but she had not yet formally made the decision to become DNR, or enter hospice the program. She came in on Monday evening, and on Tuesday got a therapeutic thoracentesis (drain fluid out of the chest using a needle -- the fluid can be from a variety of causes, but in her cases, it was cancerous) and paracentesis (draining fluid out of the abdomen using a needle -- again, cancerous in her case). On Wednesday we let her recover a little bit and made arrangements to have a family meeting. On Thursday at noon, we met with her family -- her fiance, a tall, big, strong guy who had quit his job to take care of her and was incredibly caring; her mother, a larger woman who had been rather pushy with some of the other people on the medical team and whose motives may have been slightly suspect; her aunt, a thin, sharp woman who had her Bluetooth in her ear for the entire family meeting, which looked so ridiculous to me -- at one point, when she stepped out of the room for a minute, I really couldn't decide if she was overcome with emotion or was answering a call; her father; her brother; her sister; and the second of her three children, her oldest daughter, age 18. The heme/onc attending was there, along with his nurse practitioner, and the social worker from his practice, and then there was me, the primary doctor for her hospital stay, and my third year medical student. It was a packed room. Even though Ms. Jones was doing so poorly, she wanted to look presentable for the meeting, and so the start was delayed while she tried to get out of bed to use the bathroom, wash her face, comb her hair, and put on a fresh hospital gown, with her fiance's help.
The nurse practitioner, Nancy, did most of the talking. She re-capped the situation for everyone: the patient had had multiple rounds of chemo, and the cancer kept coming back. There were no more options for treatment in which the potential rate of cure would outweigh the definite risks of side effects. And so, the physicians felt that she should focus on going home and spending time with her family. She explained hospice, and explained that it could be done at home. In the end, everyone agreed. The social workers started getting things organized. Ms. Jones would go home the next day, Friday. Overall, the meeting was sad, but I was more of an observer than a participant, and I kept myself mostly detached.
On Friday, the medical transport team was going to pick my patient up at 3 pm. By late morning, her fiance called to say everything had been set up at home (hospital-type bed, oxygen machine, etc), and could she come home sooner, because she wasn't feeling that well? So we moved up the discharge to 1 pm. I had to hurry to get all the discharge paperwork in order. And then a kink popped up and discharge was again reset for 3 pm. I saw her off, loaded in the stretcher, and she wasn't looking good. Discharge was delayed even further because when the ambulance team realized she was DNR, they had to call me to get me to fill out more paperwork certifying her code status. I noticed that the ambulance form specifically asked for an attending's signature, and I'm not one, but for things like that, it doesn't really matter. That was Friday afternoon. I found out on Monday that she died at home on Saturday. I'm OK with everything that happened, but I wish she had gone home sooner -- wish that she had become DNR and chosen to enter hospice sooner. But it's hard for doctors to give up, even when you're in the cancer business and it happens often. And it's hard to talk about those things -- if I had even been more willing to discuss everything with the patient, the meeting could have gotten scheduled sooner and she could have gone home on Thursday, instead of Friday.
I wanted to write down what happened with her, because I know I'll forget. I had the day off on Saturday, and was on call Sunday, with a fairly rough night that ended with me switching services post-call and starting in the ICU on Monday morning. And that's where Nancy the nurse practitioner ran into me, with my post-call addled brain, and told me Ms. Jones had died. I actually didn't even remember the conversation had taken place until Tuesday evening; that's how much damage being on call does to your mental function. You remember only what's completely necessary, and everything else gets pushed aside.
So that's that. I was on call again last night, and it was truly one of the roughest nights I can imagine -- definitely the worst I've had so far. The largest event of the night was a bad one, so bad that I don't even really want to talk about it, out of respect for the patient and in acknowledgement that I don't think I'm going to forget about this one any time soon. But here are some small thoughts from my first call night in the ICU:
-The 23-year-old died. Asthma, obesity, and pregnancy are not a good mix when it comes to swine flu. Her lungs were just shot, and in the end, there was no way to oxygenate her. Unfortunately, her family refused to "give up" and insisted in a family meeting a couple days earlier that we "do everything." When the time came, though, and they saw what "do everything" means -- chest compressions, with people, including me, taking turns bouncing her whole body around on the bed with the force of our compressions; sticking needles into every vein and artery we could find to try to draw blood or give fluids; bodily fluids coming out of every orifice she had -- a result of natural events, the medicines we were giving, or her impending death, I don't know; and the general chaos in the room, with us shooing them out of the room continuously while we tried to work on her and save them from seeing all these horrible things -- they reconsidered and asked us to stop. They spent a last few peaceful minutes with her instead, which was the right thing to do. Her family was a mess. I can't blame them. Her husband almost threw a chair at my resident -- he later apologized, and no one blames him for being so angry, but that's how much emotion there was. Now, a couple days later, the memory of it is at once completely fresh yet also blunted enough that I don't know how to put it into words. In a weird circle of care, it turns out that the whole rest of the OB/Gyn department worked with her in the beginning of her stay, when she delivered her baby and then got sick, and I, the only OB resident who hadn't met her during her obstetrical care, was the person who took care of her in the end.
-I got to put in a central line on a woman that night, too. First stick, and success!
-I found out the next day that a paper I worked on a few years ago will be published. It took this long because I didn't have ownership of the data, and so the work wasn't mine to publish. But the people who do own it decided to resurrect it, so it will be published later this summer in a big journal. Quite exciting!
I can't come up with a good way to end this post. I don't have any wise words or thoughts to bring things to a close. It is what it is -- the events and my feelings. I have to get them out of my head, though, both to document them and to start the forgetting/remodeling/healing process.











